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SHIFT Masterclass: Monitoring Health and Disease Progression in the CFTR Modulator Era

SHIFT Masterclass: Monitoring Health and Disease Progression in the CFTR Modulator Era

Prepared by A/Prof Tonia Douglas, this SHIFT Masterclass examines clinical challenges and gaps, and underscores opportunities to reconsider how and what we monitor in CF, to ensure it is clinically relevant and supports optimal health outcomes for patients in this new era of CF. These valuable insights were summarised from a comprehensive cross-disciplinary discussion held during Session 4 at SHIFT 2023 (11 November 2023). Read More

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SHIFT Masterclass: Shifting Models of Care for Those Growing Older with CF

SHIFT Masterclass: Shifting Models of Care for Those Growing Older with CF

Prepared in collaboration with Prof Siobhain Mulrennan (WA, AU), this SHIFT Masterclass delves into the clinical challenges and gaps, and highlights opportunities to address the needs of an aging CF population in the CFTR modulator era. These insights emerged from a comprehensive cross-disciplinary discussion held during Session 1 at SHIFT 2023 (10 November 2023). Read More

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SHIFT Masterclass: Adherence Challenges and Maintaining Engagement in the Era of CFTR Modulators

SHIFT Masterclass: Adherence Challenges and Maintaining Engagement in the Era of CFTR Modulators

Prepared by A/Prof Tonia Douglas, this SHIFT Masterclass examines clinical challenges and gaps, and underscores opportunities related to adherence challenges and maintaining engagement in the CFTR modulator era. These valuable insights were summarised from a comprehensive cross-disciplinary discussion held during Session 5 at SHIFT 2023 (11 November 2023). Read More

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Research Update: Mental Health Models of Care and the CF MDT

Research Update: Mental Health Models of Care and the CF MDT

Review a selection of recent and key research and publication updates on mental health models of care in CF, curated by Dr Tonia Douglas. Read More

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SHIFT Masterclass: Mental and Psychosocial Health in CF During Perinatal, Early Childhood and Primary School Age Life Stages

SHIFT Masterclass: Mental and Psychosocial Health in CF During Perinatal, Early Childhood and Primary School Age Life Stages

Read key points and review challenges, gaps, implications and opportunities for mental and psychosocial health in CF, as discussed during the SHIFT 2022 sessions on perinatal, early childhood and primary school age life stages, held on 11 November 2022. Read More

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Publication and Clinical Initiative Update: Mental and Psychosocial Health in CF: Life Stage – Childhood

Publication and Clinical Initiative Update: Mental and Psychosocial Health in CF: Life Stage – Childhood

Review selected key publications and clinical initiatives of interest on mental and psychosocial health in children living with CF, curated by Dr Dina Mahmood. Read More

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SHIFT Masterclass: Mental and Psychosocial Health in Cystic Fibrosis: Life Stage – Adolescence and Young Adulthood (AYA)

SHIFT Masterclass: Mental and Psychosocial Health in Cystic Fibrosis: Life Stage – Adolescence and Young Adulthood (AYA)

Read key points and review challenges, gaps, implications and opportunities for Mental and psychosocial health in cystic fibrosis, as discussed during the SHIFT 2022 session 3 on Life stage – Adolescence and young adulthood, held on 11 November 2022. Read More

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SHIFT Masterclass: Mental and Psychosocial Health in CF During Adulthood

SHIFT Masterclass: Mental and Psychosocial Health in CF During Adulthood

Read key points and review challenges, gaps, implications and opportunities for mental and psychosocial health in CF in adulthood, as discussed during SHIFT 2022 session 4, held on 11 November 2022.  Read More

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Research Update: Mental and Psychosocial Health in CF During Adulthood

Research Update: Mental and Psychosocial Health in CF During Adulthood

Review a selection of research studies, resources and key publications of interest on mental and psychosocial health in adults living with CF, curated by Maggie Harrigan. Read More

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SHIFT Masterclass: Mental Health within CF Multidisciplinary Teams

SHIFT Masterclass: Mental Health within CF Multidisciplinary Teams

Read key points and review challenges, gaps, implications and opportunities for mental and psychosocial health in CF, as discussed during the SHIFT 2022 session on the impact of mental health within CF multidisciplinary teams (MDTs), held on 12 November 2022. Read More

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Research Update: Mental Health within CF Multidisciplinary Teams

Research Update: Mental Health within CF Multidisciplinary Teams

A selection of recent and key publications of interest and staff wellbeing initiatives and resources that may provide ideas and inspiration for improving staff wellbeing in the CF workplace, curated by Maggie Harrigan.   Read More

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Introducing the Living Well with CF (LWWCF) Initiative

Introducing the Living Well with CF (LWWCF) Initiative

Read about Living Well with CF (LWWCF), a clinician-led initiative informed by lived experience that is exploring what living well with CF means, defining unmet needs and enabling access to up-to-date, useful and quality resources and supports to empower those living with CF to Live Well. Read More

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