Presentation summary – SHIFTing Focus Resource Hub

State-of-the-Art: Monitoring Health and Disease Progression in the CFTR Modulator Era

Paula Woodward 18/07/2024

Prof Daniel Peckham reviews the state-of-the-art for monitoring health and disease progression in the CFTR modulator era. This article is based on presentation given by Prof Peckham at SHIFT 2023, and explores how we must reconsider how and what we monitor in CF, to ensure it is clinically relevant and supports optimal health outcomes for patients in this new era of CF. Read More

State-of-the-Art: Outpatient Models of Care in CF

Paula Woodward 18/07/2024

Dr Shivanthan Shanthikumar reviews the state-of-the-art for outpatient models of care in the CFTR modulator era. This article is based on presentation given by Dr Shanthikumar at SHIFT 2023, and explores how we must adapt current outpatient care models to maximise opportunities afforded by digital technology, meet the needs of pwCF across emerging phenotypes and optimise health outcomes. Read More

State-of-the-Art: Shifting Models of Care for Those Growing Older with CF

Paula Woodward 15/05/2024

Prof Scott Bell reviews the state-of-the-art for models of care in the context of he aging CF population in the CFTR modulator era. This article is based on presentations given by Prof Scott Bell and Prof Elizabeth Tullis at SHIFT 2023, and emphasises the importance of identifying and addressing various emerging CF phenotypes while tailoring models of care to meet the needs of all people with CF across the lifespan. Read More

State-of-the-Art: Adherence Challenges and Maintaining Engagement in the Era of CFTR Modulators

Paula Woodward 15/05/2024

A/Prof Alistair Duff reviews the current state-of-the-art models of care design to sustain patient engagement with care and promote adherence to treatment. This session explored the current and future issues that may affect adherence in the future and the implications for health professionals. Read More

Contemporary Psychosocial Care in the CFTR Modulator Era: A Training Program for CF Multidisciplinary Teams

Paula Woodward 15/05/2024

aggie Harrigan reviews the LWWCF Training Program for CF multidisciplinary teams: Contemporary psychosocial care in the CFTR modulator era, designed to address the need for better multidisciplinary team education and support in response to the increasingly complex psychosocial needs of those living with CF. Read More

State-of-the-Art: Models of Mental Health Care in CF: Collaborative and Integrated Care

Paula Woodward 08/09/2023

State-of-the-Art: Models of Mental Health Care in CF Collaborative and Integrated Care Alexandra Quittner Published: 18 July 2024 Return to Resource Hub Australian and international experts reviewed the current state-of-the-art for… Read More

State-of-the-Art: Mental and Psychosocial Health in CF During Perinatal and Early Childhood

Paula Woodward 07/09/2023

During Session 1 of the SHIFT 2022 symposium, Australian and international experts reviewed the current state-of-the-art for mental and psychosocial health in perinatal and early childhood. The session discussed the impact a CF diagnosis can have on parenting, and how this can either enhance or challenge the psychosocial wellbeing of the growing infant and their caregivers. Read More

State-of-the-Art: Mental and Psychosocial Health in CF in the Primary School Years

Paula Woodward 07/09/2023

During Session 2 of the SHIFT 2022 symposium, Australian and international experts reviewed the current state-of-the-art for mental and psychosocial health in primary school children. The session discussed the prevalence and implications of ill mental health in primary school-aged children with CF and their caregivers, and the need to identify and address gaps in research for this age group. Read More

State-of-the-Art: Mental and Psychosocial Health in CF During Adolescence and Young Adulthood – a Research Perspective

Paula Woodward 07/09/2023

During Session 3 of the SHIFT 2022 symposium, Australian and international experts explored the unique challenges that adolescents and young adults with CF face, and the barriers that we must overcome to provide optimal models of care for this age group. In this article, Dr Lucy Holland provides an overview of her research-focused presentation from this session. Read More

State-of-the-Art: Mental and Psychosocial Health in CF During Adolescence and Young Adulthood – a Clinical Perspective

Paula Woodward 07/09/2023

During Session 3 of the SHIFT 2022 symposium, Australian and international experts reviewed the current state-of-the-art for Mental and psychosocial health in adolescence and young adulthood. The session explored the unique challenges that adolescents and young adults with CF face, and the barriers that we must overcome to provide optimal models of care for this age group. Read More

State-of-the-Art: Adolescent Assessment Using ADAPT-CF

Paula Woodward 07/09/2023

During Session 3 of the SHIFT 2022 symposium, Australian and international experts reviewed the current state-of-the-art for mental and psychosocial health in adolescence and young adulthood. In this article, Brandi Middour-Oxler provides an overview of her presentation on adolescent assessment using ADAPT-CF. Read More

State-of-the-Art: Mental and Psychosocial Health in CF During Adulthood

Paula Woodward 07/09/2023

During Session 4 of the SHIFT 2022 symposium, Australian and international experts reviewed the current state-of-the-art for mental and psychosocial health in adulthood in the context of the shifting psychosocial landscape of CF transmembrane conductance regulator (CFTR) therapy, and how this is already changing the direction of future research goals. Read More